So, it's 9:30pm now and my physiotherapy was at 2:30pm. I have to have a porter to take me to the physio department, well, I'm still waiting... The nurses called the porters at 2:25, then at 3, but nothing. I'm a bit pissed about it, because I want to do the physio, it's part of why I'm here. I want to learn my limits and get over the fear I have of injuring myself, but how can I do that if I can't get to the physio gym?! Also earlier, my Arts and crafts session was cancelled as the OT who takes my sessions was ill and there was no-one who could covet for her.
I did get some good news today, however. I met with the ward doctor and we talked over Marfans as well as my family history. The doctor said that after reviewing everything (because of my worries and want for further investigations), it turns out that it's pretty much certain that I don't have Marfans. Which for me is such a relief, because Ehlers-Danlos isn't life-threatening. We also talked about my heart and work worries, which gave me a lot of reassurance. Although my heart condition might be worrying, it's actually normal for "POTS" sufferers, as the heart sometimes can't keep up with itself!
Well, an exciting day today. Hopefully it'll be a bit more relaxed tomorrow.
Good news, indeed. One less thing to worry about, now you can concentrate on physio and increasing your awareness without wondering what is going on underneath.
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